Research Policy

The safety and well-being of children is the number one priority for LLS in all of its activities, and LLS will take all reasonable and appropriate action to ensure this safety and well-being in all its activities, including research.

Where appropriate, LLS will ensure that informed consent is sought from each prospective subject or the subject's legally authorized representative, that informed consent will be documented, that data collection will be monitored to ensure the safety of the subjects, that the subjects' privacy is protected and confidentiality of data is maintained, and that the rights and welfare of subjects from vulnerable populations are protected by additional safeguards.

When the subject is a child, consent must include both assent by the child and the permission of the parent or guardian. 

The confidentiality of personally identifiable information will be maintained throughout the research and thereafter.